About Neuroendocrine Cancer UK
Neuroendocrine Cancer UK, founded in 2002, is a dedicated non-profit organization based in the UK. Though we are a small team, our ambition is vast, and we are deeply committed to serving the neuroendocrine cancer community. Recognizing the challenges of addressing a less-common cancer type, we believe in the power of collaboration. To amplify our impact, we work closely with various partners, including INCA, ENETS, UKINETS, Maggie’s, AMEND, ACCSupportUK, The Ann Edgar Charitable Trust, and Cancer52, among others. Through these partnerships, we strive to provide the best possible support and care for those affected by neuroendocrine cancer.
Our advocacy work
A cancer diagnosis is one of life’s greatest challenges. When the cancer is rare or uncommon, it can bring additional difficulties, particularly in terms of awareness, early diagnosis, and access to specialised care. Feelings of isolation, fear, uncertainty, and anxiety are often part of the experience.
Neuroendocrine Cancer UK is here to address the unmet needs of the neuroendocrine cancer community, offering support to patients and their loved ones as they navigate the physical and psychological burdens of this disease.
As an evidence-based advocacy group, we collect real-life data from the community to drive change in commissioning for neuroendocrine cancer treatments and clinical practice. Our advocacy role is focused on impacting a community unaware of the needs of neuroendocrine cancer patients. By sharing our knowledge and patient experience, we can collaboratively create positive change. We want to enhance awareness and self-confidence within the patient community so they can make informed choices and ask questions.
Our vision, mission and values
In all of our work, we are guided by a steadfast commitment to our principles, purpose, and vision. These foundational elements shape our decisions, inspire our actions, and ensure that we remain focused on our mission. They serve as the compass that directs our efforts, allowing us to consistently provide meaningful support and make a lasting impact on the communities we serve.
Our History
Neuroendocrine Cancer UK was founded with the vision of providing support, raising awareness, and driving research for those affected by neuroendocrine cancer. What started as a small community initiative has now grown into a leading charity that advocates for patients and their families across the UK.
Our journey began with a group of passionate individuals who recognised the need for more information and support for those living with this often misdiagnosed cancer. Since our inception, we have expanded our reach, developed key services, and launched a variety of initiatives to improve understanding and treatment options for neuroendocrine cancer.
Over the years, we have partnered with other organisations, contributed to critical research, and developed educational resources for healthcare professionals. Today, we continue to advocate for improved care, diagnosis, and treatment, while supporting the community through information, resources, and fundraising.
As we look to the future, our commitment to supporting the neuroendocrine cancer community remains unwavering, and we are proud of the progress we’ve made together.
