Neuroendocrine Cancer UK, founded in 2002, is a dedicated non-profit organization based in the UK. Though we are a small team, our ambition is vast, and we are deeply committed to serving the neuroendocrine cancer community. Recognizing the challenges of addressing a less-common cancer type, we believe in the power of collaboration. To amplify our impact, we work closely with various partners, including INCA, ENETS, UKINETS, Maggie’s, AMEND, ACCSupportUK, The Ann Edgar Charitable Trust, and Cancer52, among others. Through these partnerships, we strive to provide the best possible support and care for those affected by neuroendocrine cancer.
Visit our website: www.neuroendocrinecancer.org.uk
Our advocacy work
A cancer diagnosis is one of life’s greatest challenges. When the cancer is rare or uncommon, it can bring additional difficulties, particularly in terms of awareness, early diagnosis, and access to specialised care. Feelings of isolation, fear, uncertainty, and anxiety are often part of the experience.
Neuroendocrine Cancer UK is here to address the unmet needs of the neuroendocrine cancer community, offering support to patients and their loved ones as they navigate the physical and psychological burdens of this disease.
As an evidence-based advocacy group, we collect real-life data from the community to drive change in commissioning for neuroendocrine cancer treatments and clinical practice. Our advocacy role is focused on impacting a community unaware of the needs of neuroendocrine cancer patients. By sharing our knowledge and patient experience, we can collaboratively create positive change. We want to enhance awareness and self-confidence within the patient community so they can make informed choices and ask questions.